I seriously am starting to feel a tad overwhelmed by the amount of people/appointments/extra care Nolen is going to require for awhile (and possible for a long time).
Sometime in the next day or so, I am learning how to put in an NG tube (for a video of what I will be doing, but on a baby not an adult), care for it, feed him using it, clean it, and remove it.
Arranging for a baby scale and pump to be rented and brought home to weigh Nolen after nursing him so that I can insure he gets the proper amount of breastmilk through his tube.
Arranging for Early Intervention (a great program that New Jersey offers to it's children where a home nurse evaluates your child and determines what therapies may be needed) to start making visits.
Follow up appointments with various doctors and therapists as needed. It's starting to look like I'll have plenty of appointments to keep myself busy with.
With that said, and as overwhelmed as I am...I am so ready to get out of this hospital. I have started recognizing other "blue band club members" as one of the fellow parents called us today as we were getting our complimentary coffee at the McDonald's in the food area for being parents of patients. A sure sign that it's time to be at home.
Gift Guides 2024
20 hours ago
3 comments:
i bet your so excited to be in your own house, own bed, with your 2 girls also!
its a long road but you've been so amazing and strong you rock!!!
prayers for a safe trip home and a speedy full recovery with no feeding tubes or therapy!
It is hard to get used to all the extra appointments and extra care... but I have had so many people ask me how I do it. I have two answers - 1. I HAVE to! What choice do I have, my son NEEDS it and I am the only one who can do it! and 2. I have to lean on God each and every day for the strength to keep going, to not give up. He is the only reason I can do what I need to do! Even though it is hard - you will be able to get it all done!
I am glad I can read through your blog and keep updated!
It is all overwhelming at first, but you will settle into a routine. You will feel so much better when you are back in your own home! And, yes, NJ's Early Intervention program rocks!
Post a Comment