Wednesday, March 30, 2011

Long time no post

Once again, I must apologize to you all for neglecting the blog. Life has really gotten hectic!! Ryan is currently in training so we have been soaking up the Daddy time while we can, knowing that as soon as training is done life will get even more hectic!!!

Nolen has passed the 6 months since illness mark, and we have accepted that a full recovery is not to be expected buy we still hope for it. I will post more on him later, but his health and GI issues have improved. His blood levels aren't normal, but don't indicate Leukemia/Liver/Kidney failure as of yet. And he is making some great strides in therapy. Which brings me to why life has been so crazy.

--We have our application in for Disability, our Social Worker Stan thinks we have too much money in savings and unless we can get them to look at Nolen separate from us we probably won't qualify. The application process is absurd! It took about a week of nothing but working to post his medical history! I'll send you guys the picture of "The Stack" so you can fully appreciate the amount of work that goes into just the beginnings of the application process!!

--Nolen has been evaluated for Occupational therapy (adding it once a week), Developmental teaching (to help with his cognitive, social, emotional and language delays). He qualified for both and we will be adding these two therapies to our existing two for a total of 4 therapy sessions/week (maybe five because our CHOPS therapist wants to add OT as well).
We are waiting on referrals for a hearing test and developmental pediatrician as well.

--Nolen has these precious braces to wear

-My Darling husband and my best friend from Oklahoma arranged for a quick getaway to NY. It was amazing and much I was and am probably quickly approaching therapy burnout. Tips anyone??

Here are some snapshots from our trip
--Prom-- the Awesome 80s Prom, an interactive improv show where Em and I partied like it was 1989.

Breakfast club anyone??

Then we went on to Ellis island and liberty Island...where we did not act our age an ended up with some awesome pictures.

I co-hosted a Kraft First Tasters party! Lots of great food and free stuff!!

And...I was contacted by word of mouth for my first sewing job! A passion made a modest profit.

Custom Colts Baby Bedding


Crib Skirt

And Blanket

I also painted this for my girls...

We have been making some serious progress on the homeschooling front, which has also cut into my blogging time.

Along with my sister in law is due in July and keeps handing over some items to me to handle while she peeps for baby and I get my feet wet as her replacement come the arrival of her little girl in July!

Thanks for hanging in there and for checking up on me! I miss you guys too!

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Kim said...

Good to get an update from you! Nolen is getting so big! I'm glad you got some time away - it's important for everyone with kids every once in a while, and you especially!! That's an awful lot of therapy - glad you have tricare!! Can't believe how busy you stay - you are amazing.

leehuck said...

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